Its been a crazy whirl getting ready for the Launch of my Foundation. So many phone calls and emails from people who have heard me on the Radio and TV wanting help. The numbers of Mesothelioma must be a lot higher than reported. I feel like I’m gathering so many on to Face Book and from there I pass over all the info they need to cheer up a realise there is hope. On Oncologist has actually told a new diagnosed Patient that there is no cure (Agree) But no trials and no operations are carried out in the UK ?? I would be dead if that was correct. I despair I really do. The patient has now got details and an appointment to see if they are ok for a trial.
I have all the links or my broadcastings.
We went to Radio Kent Saturday in the dark and did a great broadcast so early in the morning. Pat Marsh is so very sweet but not in pantomime gear, He asked if he should have dressed up for me to recognise him as I have only ever seen him dressed as a woman
Click on the link it’s here on our We Page http://www.mavisnyefoundation.com/aims.html
There have been so many write ups.
http://ibasecretariat.org/lka-blog.php#a136
As if by a fortuitous alignment of the planets, between November 21 and 28, 2017, the actions of a British campaigner, a Brazilian engineer, a Colombian Senator, an Australian physician and an Indian school teacher highlighted multiple facets of the global struggle for asbestos justice at places as diverse as the British Parliament, universities in Rio de Janeiro and Bogota, a monastery in the West Australian capital of Perth and a United Nations hearing in Geneva.
On Tuesday November 21, 2017, Mavis Nye, who was diagnosed with mesothelioma in 2009 and is in recovery following treatment with the immunotherapy drug Keytruda, attended a meeting of the Parliamentary Asbestos Sub-Group at the House of Commons.
1. During the discussions, Mavis drew attention to the discrepancy which now exists between civil court verdicts mandating that defendants cover costs for non-NHS funded treatments such as those she herself benefited from and awards made under the Diffuse Mesothelioma Payment Scheme (DMPS)
2. Which only provide a one-off lump sum payment to eligible claimants. For a person diagnosed in her late sixties, as Mavis herself was, the amount paid by the DMPS would be around £168,000, enough to pay for about two years of immunotherapy treatment, were the entire award applied to that purpose.
3. As a result of Mavis’ intervention on November 21, enquiries are being made into the feasibility of amending provisions of the DMPS to address this discrepancy. Next month (December 2017), Mavis and her husband Ray are launching the Mavis Nye Foundation “to provide a hardship fund and support and financial grants to aid newly diagnosed victims of mesothelioma in the UK.”4 In an interview, Mavis said: “I was so lucky and believe I was saved from this dreadful disease for a purpose. I hope that the new foundation will enable me to help those still suffering.”
Trevor D Sterling
Partner – Moore Blatch Solicitors ;Chair Mary Seacole Trust ;Chair Mavis; Nye Foundation & Deputy Chair Headway SW London
Listen to the inspirational Mavis Nye who explains on Radio 4’s Today Programme how she fought back against #asbestos cancer (Mesothelioma ) and now inspires others. https://lnkd.in/gZYHQ8Z
Pls support https://lnkd.in/g5cGC4Q
as we endeavour to support asbestos sufferers, healthcare professionals & researchers.
One of the people I have great respect for is Mavis Nye, the founder of Mavis Nye Foundation. She does wonderful work with her foundation and speaking engagements. With boundless energy, she has a strong commitment to educate others on the dangers of asbestos exposure. She is also a tireless advocate for Mesothelioma patients and works with associated support groups.
Mavis recently asked me, “Would GLOBAL Encasement, Inc.’s green coatings be of benefit on Brownfield properties?”
My answer: YES! Absolutely. GLOBAL Encasement, Inc.’s (GEI) Green Coatings Encasement has a worldwide proven track record for this and continues to be of benefit to all buildings, especially environmentally distressed ones.
ADAO Linda ReinStein
http://www.asbestosdiseaseawareness.org/archives/45380
Read all about @Mavis Nye BCAhs, her December 7 event, and how you can help in today’s blog: “Interview with Meso Warrior, Launches New Patient Support Organization, the Mavis Nye Foundation.”
And then a lovely email to become an Ambassador for our company and the work we are doing to save and improve lives through clean innovation.
This will all be announced in the new year but it makes you wonder just where this journey will take me.
All the things we have to take for The launch is all piled together and will be packed away tomorrow ready. Paintings, cards , everyone is ready now for the fun we have made it. Its been hairy at times but we are there now except I phoned the hotel in case I had to book a parking space and she just couldn’t find my name. Ekk. I said but the do is in my name I booked right at the beginning months ago. It took about 10mins to sort and I said I’m having a heart attack she said not as bad as I am. She found it thank goodness and I was all paid up. I knew I was.
So we calm now and just enjoy it all.
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